Help 5 Yr.-Old Julianna Raise Funds for CMT Research
Who is Julianna?
Isn’t she a beautiful Princess? She’s a little Princess with a lot of wisdom and an imagination that doesn’t quit. As described by her mother:
J is smart, opinionated and kind. She thinks everything looks better embellished and is happy almost all of the time. She dislikes conflict and messy hair. Her middle name is Yuri.
You may have learned of 5 year-old Julianna, who has a severe version of CMT (Charcot-Marie-Tooth Disease) on CNN back in 2015. Her story went viral when she expressed to her mother that she wanted to die at home (not at the hospital) the next time she gets “that” sick. That’s the short story.
Though despite all the obstacles Julianna is up against, Julianna has had a vision. A dream. Her vision – to publish a book and donate all the proceeds to the CMTA foundation. She’d love nothing more than to be able to help CMTA find a treatment for those who suffer from CMT disease, even though it may not become available to her soon enough.
Well, guess what?!?! Julianna’s vision has become a reality. Julianna’s Adventures has been published and you can get a copy now.
About Julianna’s Adventures:
“I can’t walk but I can talk…” — Julianna Snow, age 5 Julianna supports all things beautiful, adventuresome and sparkly. Above all, she loves LOVE. Julianna has a severe form of CMT (Charcot-Marie-Tooth disease), a hereditary neuromuscular disorder. In her stories, she takes us to a bright, sweet and joyful world where there are no limits. Proceeds of this book will benefit the CMTA (CMT Association).
- 66 pages, full color
- features 3 adventures: stories by Julianna, illustrations by Christine Stalie
- $20.52 (plus tax and shipping) on lulu.com
- all proceeds will go to CMTA
Have you heard this quote?
“If you think you’re too small to make a difference, you‘ve never been in bed with a mosquito.” —Anita Roddick
Julianna is proof that no one is too small to make a difference. You can help her make a difference when you buy her book, Julianna’s Adventures.
For the long of Julianna’s journey with CMT visit http://juliannayuri.com/. The stories, written by her mom about her little Princess are priceless. The intricates you learn about Julianna are exceptionally heart-warming. You’ll feel compassion as you hear what Julianna and her family endures. You may shed some tears. For sure though, you’ll close out the site and be left thinking about not taking life for granted. Yours. Your children’s. Your loved ones.
Julianna and her family are working really hard at raising funds for CMT research. Be sure to check out other fundraising events happening at http://juliannayuri.com/current-fundraising-events/.
#JuliannaStrong #GoJulianna #Julianna’sAdventures